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How Research Data Sharing Can Save Lives

CLICK HERE - WHO - Developing Global Norms for Sharing Data and Results during Public Health Emergencies

blogs.bmj.com - by Trish Groves / The BMJ - September 8, 2015

The whole debate on sharing clinical study data has focused on transparency, reproducibility, and completing the evidence base for treatments. Yet public health emergencies such as the Ebola and MERS outbreaks provide a vitally important reason for sharing study data, usually before publication or even before submission to a journal, and ideally in a public repository.

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CLICK HERE - Wikipedia - Ingelfinger rule

 

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WHITE HOUSE FACT SHEET: The Global Health Security Agenda

The U.S. Government announces it intends to invest more than $1 billion in resources to expand the Global Health Security Agenda to prevent, detect, and respond to future infectious disease outbreaks overseas.

THE WHITE HOUSE PRESS OFFICE                       July 28, 2015

The Ebola epidemic in West Africa continues to galvanize global attention and resources as the international community strives to eliminate active cases and help the affected countries recover.  African leaders and African Union officials have shown extraordinary leadership in addressing the outbreak. The epidemic highlighted the urgent need to establish global capacity to prevent, detect, and respond to biological threats – to prevent future outbreaks from becoming epidemics. 

Beginning with the release of the National Strategy for Countering Biological Threats in 2009, and outlined in his 2011 speech at the United Nations General Assembly, President Obama has called upon all countries to come together to prevent, detect, and respond to infectious disease threats, whether naturally occurring, accidental or deliberately spread.  Today, the President underscored the unwavering U.S. commitment to partnering with Africans, their governments, and all who will join the effort to improve health security across the continent and for all people.

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Stopping the next pandemic today

OP-ED  WASHINGTON POST,  June 7, 2015

By Ron Klain, the  White House Ebola response coordinator from October 2014 to February.

....To the extent there is discussion of improving the international response to epidemics, the focus has been on the need to reform the World Health Organization. Such reforms are badly needed, but even a fully effective WHO will not close the most gaping holes in the world’s epidemic response system. Even if the WHO did a better job of recognizing outbreaks that pose a risk of epidemic and alerting the world that action is needed, it does not have the substantial response function needed to combat such an epidemic. Recent discussions about creating a WHO response function — assuming that the agency could be trusted to manage it — rely largely on overburdened and underfunded nongovernmental organizations to staff a response. Thus, any new WHO response capacity will lack military-style mobile hospitals ready to be deployed; battalions of medical personnel with accompanying security support to isolate and treat the infectious and the ill; or a medical airlift capacity to move patients to places where they can get help...

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Ebola Response Reveals the Need for New Models for Collaboration Between the Private and Public Sectors

A Report by the World Economic Forum and BCG Analyzes the Private Sector's Response to the Ebola Outbreak and Distills Lessons for Public-Private Partnerships in Future Health Crises

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BOSTON CONSULTING GROUP -MARKETWIRED June 4, 2014

CAPE TOWN, SOUTH AFRICA-- The private sector played an important role in the global response to the Ebola outbreak in West Africa not only by providing financial and in-kind donations but also by acting as a partner to support response activities.

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Global health leaders ask G7 for post-Ebola rapid response unit

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REUTERS by Kate Kelland                                                           June 5, 2015
LONDON -- Global health leaders will ask G7 leaders this weekend to back the creation of a specialist rapid response unit to tackle outbreaks of infectious killer diseases.

The corpse of a patient who passed away is given back to the family for funerals after being decontaminated by the MSF teams. It was washed with chlorine solution and put it in a hermetic bag also disinfected to leave the high risk area.

The move reflects how the World Health Organization in particular was caught unprepared last year by Ebola, which spread through three West African countries, has killed 11,000 people, and will not be stamped out before the end of this year.

Jeremy Farrar, director of the Wellcome Trust global health charity, said the unit should come under the WHO, but be free of bureaucracy and able to act independently "in days" when a potentially fatal epidemic begins...

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Ebola outbreak thrusts MSF into new roles

 Relief agency sees its mission expanding after leading response to West Africa epidemic.

NATURE by  Erika Check Hayden                          June 3, 2015

GENEVA -- Joanne Liu, president of Médecins Sans Frontières (MSF), is not overly concerned with diplomacy. Participating in a panel in Geneva, Switzerland, on 20 May with officials from the United Nations, the World Health Organization (WHO), Liberia and Sierra Leone, she propped her head on her hand, stared into space and rolled her eyes during another speaker’s remarks. When she spoke, she excoriated the world for leaving West Africa vulnerable to the largest Ebola epidemic in history. “We’re failing, guys,” she said.

Joanne Liu visiting an MSF trauma centre in Kunduz, Afghanistan.

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The Bill & Melinda Gates Foundation to Fund Disease Surveillance Network in Africa and Asia to Prevent Childhood Mortality and Help Prepare for the Next Epidemic

PR NEWSWIRE                                                                                                  May 7, 2015

(Scroll down for interview with Bill Gates)

At its Global Partners Forum, the Bill & Melinda Gates Foundation will announce the Child Health and Mortality Prevention Surveillance Network (CHAMPS), a network of disease surveillance sites in developing countries. These sites will help gather better data, faster, about how, where and why children are getting sick and dying. This data will help the global health community get the right interventions to the right children in the right place to save lives. The network will also be invaluable in providing capacity and training in the event of an epidemic, such as Ebola or SARS. The Gates Foundation plans an initial commitment of up to $75 million on the effort.

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Ebola pioneer, stem cell researcher honoured with Canada Gairdner Awards

CANADIAN PRESS                                                                                March 25, 2015
One of the co-discoverers of the Ebola virus and a leading Canadian stem cell researcher are among this year's winners of the prestigious Canada Gairdner Awards.

Dr. Peter Piot is the recipient of the Canada Gairdner Global Health Award, recognizing his work on the discovery of the Ebola virus in 1976 and his leadership in the global response to the HIV-AIDS epidemic.

Dr. Janet Rossant, chief of research at Toronto's Hospital for Sick Children, is the recipient of the 2015 Canada Gairdner Wightman Award, which honours a Canadian who has demonstrated outstanding leadership in medicine and medical science.

Five international scientists are also being honoured with Canada Gairdner Awards, two each from the United States and Japan and one from Switzerland....

Dr. Peter Piot won the 2015 Canada Gairdner Global Health Award in recognition of his work on the discovery of the Ebola virus in 1976 and his leadership in the global response to the HIV-AIDS epidemic. (David Azia/Associated Press)

Red complete story.

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Ebola outbreak 'over by August', UN suggests

BBC   by  Smitha Mundasad                                                                                        March 23, 2015

The Ebola outbreak in West Africa will be over by August, the head of the UN Ebola mission has told the BBC.

 

 Ismail Ould Cheikh Ahmed admitted the UN had made mistakes in handling the crisis early on, sometimes acting "arrogantly".

A year after the outbreak was officially declared, the virus has killed more than 10,000 people...

The head of the UN Ebola response mission told the BBC, when the virus first struck, "there was probably a lack of knowledge and there was a certain degree of arrogance, but I think we are learning lessons.

"We have been running away from giving any specific date, but I am pretty sure myself that it will be gone by the summer."

Read complete story.
http://www.bbc.com/news/health-32009508

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How to stop the next epidemic

THE ECONOMIST                                                                                    May 19, 2015

..when the next epidemic breaks out, how do we prevent it from spreading around the world? It is easier said than done.
 
First: Early detection is critical, and it relies on good surveillance. But only 64 of the 194 member states of the World Health Organisation (WHO) have the surveillance procedures, laboratories and data-management capabilities required by the International Health Regulations. Improvements in things like basic public health infrastructure are needed...

Second: A swift response to an outbreak – which might involve getting skilled people, equipment and money to the right places – can potentially save more lives than drugs and vaccines. ... The World Health Organisation and the global community were slow to recognise that there was an international public health emergency.

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